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FISHINLADY
11-22-2002, 01:37 AM
DOES ANYONE KNOW ANYTHING ABOUT A DISEASE CALLED HEMACHROMOTOSIS?
MY HUSBANDS DAD WAS JUST DIAGNOSED WITH THIS AND THEY SAID BASICALLY HE ONLY HAS A FEW MONTHS. HE WILL BE COMING HOME TOMORROW

ANY HELP WOULD BE MUCH APPRECIATED

TIA
FL

Tinkerbell1031
11-22-2002, 02:14 AM
I have a question for you. Is the disease "hemachromatosis"? or "hemochromotosis"?

I was trying to find some information for you and I looked in my medical books. the only thing I found was for "hemochromotosis" and it says <this is going to be a direct quote>

A disease characterized pathologically by excess deposits of iron throughout the body. The liver becomes enlarged; the skin is pigmented so that it has a bronze hue; and there is diabetes and frequently cardiac failure. It is a rare disease seen ten times as frequently in males as females. The majority of cases develop after the 4th decade. <also referred to as bronzed diabetes>
That is from "Taber's cyclopedic medical dictionary"

okay.. here is more.. this is direct quote from The American Medical Association Home medical encyclopedia.

Hemochromatosis
An inherited disease (also known as "bronze diabetes") in which too much iron is absorbed. Over the years the excess iron accumulates in the liver, pancreas, heart , testes, and, to a lesser extent, in other organs.

Causes
The disease is confined almost entirely to men. Women are very rarely affected because they regularly lose iron in their menstual blood. Although the disease is known to be genetic in origin, the exact mode of inheritance is unclear. Male relatives of an affected person are at risk.

Symptoms, Complications, and Diagnoses
Hemochromatosis rarely causes problems until middle age. A loss of sexual drive and reduction in the size of the testes are often the first signs. Eventually the rion overload causes liver enlargement and cirrhosis (chronic liver damage), deficient insulin production by the pancreas leading to diabetes mellitus, bronzed skin coloration due to iron pigment deposition under the skin (hence the alternative name), cardiac arrhythmia and other heart disorders, and, during the late stages of the disease, liver failure and liver cancer.
The diagnosis is based on blood tests that reveal a high level of iron in the blood and a liver biopsy (removal of a small sample of tissue for analysis).

Treatment
The disease is treated by venesection (removing blood) in the same way that blood is removed during blood donation. Initially, venesection is performed once or twice a week. Once the iron level has returned to normal, the procedure is required only three or four times a year.
For young men, treatment can prevent the development of complications; for those who have the fully developed disease, regular venesection can prolong life. Chelating agents (such as deferoxamine) have been investigated as an alternative to venesection.

I hope this helps (if this is the correct thing your looking for) if not then I will search some more for you.

-Shelli

FISHINLADY
11-22-2002, 02:28 AM
THANK YOU SO MUCH SHELLI
YES UNFORTUNATELY THIS IS ONE AND THE SAME THING
THIS IS WHAT HE HAS

WE OPTED TO NOT DO THE LIVER BIOPSY BECAUSE HE ONLY HAS A 20% CHANCE OF MAKING IT THROUGH THE BIOPSY

THIS IS WHAT HAS CAUSED HIS LIVER CIRRHOSIS,HEART PROBLEMS AND MORE SO THAN NOT HIS DIABETES

I HAVE STUDIED HARD AND LEARNED HOW TO TREAT HIS DIABETES BUT I HAVE NO CLUE WHAT TO DO ABOUT THIS

BASICALLY I KNOW WE ARE IN FOR A HARD ROW TO HOE WHEN HE COMES HOME
DOES IT SAY ANYTHING ON WHAT TO DO FOR THEM AT HOME? WHAT TO EAT? ANYTHING LIKE THAT
I HOPE I AM MAKING SENSE I HAVE CRIED SO HARD I CANT EVEN HARDLY SEE OUT OF MY EYES MUCH LESS THINK STRAIGHT

THANK YOU SO MUCH SHELLI
KAREN

jamireles
11-22-2002, 10:02 AM
{{{{{{{FISHINLADY}}}}}}}}

I"m so sorry! with everything else that has been going on with him and now this. Seems everything comes down at once. You and your family are in my prayers.

FISHINLADY
11-22-2002, 10:30 AM
THANKS SO MUCH JAMIRELES

WE ARE JUST GOING TO TRY AND MAKE THE BEST OF WHAT LITTLE TIME HE HAS LEFT.
HE WILL BE AT HOME WITH US
WHERE HE IS LOVED AND WE WILL TAKE CARE OF HIM.

THANKS
KAREN

Tinkerbell1031
11-22-2002, 06:34 PM
I talked with my biology instructor at the college today and she has a good friend in internal medicine, she took down the name of the disorder and she is going to try and get some information for me over the weekend. Unfortunately, most of the information I found didn't have anything on diets, ect. So when I goto school on monday hopefully I can give you more information. And in the meantime I will continue to go over my books and see if I can find anything else. I'm going to talk with my best friend (she is a nurse) and see what she can tell me.
You're in my prayers, as well as your family.
-Shelli

FISHINLADY
11-26-2002, 09:51 AM
shelli
thank you so much for all your hard work on this
i am sorry i havent had a chance to get back with you
understandably it has been very hectic this week

and if you do find anything you can either post it here or you could leave me an offline on my yahoo messenger

thanks again
you are a doll for looking into this!!
:)
fl

Tinkerbell1031
11-26-2002, 06:25 PM
my biology instructor gave me a HUGE packet of info today.. I wanna send it to you through yahoo messenger though.. there is WAY too much to put on here.
-Shelli